Vaccination for COVID-19

Over the last year and a half many anxious parents around the world, have been asking why those who have Floating Harbor Syndrome (FHS) have not been classified for inclusion in a high priority group, within the vaccination programs relating to COVID-19.

The advice we have to date, is that all persons with a formal diagnosis should be vaccinated as a high priority case. At the time of writing this information applies to ages 12 upwards.

Pending further investigation in this category of neurodiversity and genetic complexity, individuals with FHS must be considered as having a higher risk of contracting serious side effects due to the virus and should be treated as such. Most individuals with FHS have Developmental Delays and the CDC supports the advice given: –

“Some people with developmental disabilities may have difficulties accessing information, understanding or practicing preventative measures, and communicating symptoms of illness”.

We strongly advise that all Health teams around the World acknowledge that FHS individuals are in urgent need of protection in this area because failure to provide vaccinations to them may have a detrimental effect on their quality of life.

What FHS individuals must endure to live life are unique within their classification and are not duplicated within any other groups, or anywhere else for that matter.

Action must be taken now.

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