We have put together a variety of information from parents, support organisations and other professionals involved in the management of people with Floating Harbor Syndrome and it is very important to acknowledge their contribution so that their valuable time and efforts are well recognised.

In some instances, we have no names, only the organisation or the website; if you recognise your link, please get in touch so that we can update our database and amend the record accordingly.

In no particular order, we would like to thank and acknowledge:

The Staff @ Genetic Disorders UK

Tania Tirraoro (CEO)Special Needs Jungle

Lois LanderGenetic and Rare Diseases Information Center (GARD)

FHS contact pageContact a Family FHS

Sarah Nikkel (Geneticist) @

Susan Spinasanta (Managing Medical Editor, Vertical Health) Scoliosis in Children

CAF London officeCAF Organisation

Online Mendelian Inheritance in Man

Rachel MarshAnti-Bullying UK

Microcephaly Foundation

Genome Medicine University of Exeter

London GeneticsGuys and St.Thomas

Noni Louther, parent of FHS young adults (Australia)

Meghan Towne – Genetic Counsellor Boston Childrens Hospital, Boston, MA

Dinah Aitken and Mig CoupeSalvesen Mindroom