We have put together a variety of information from parents, support organisations and other professionals involved in the management of people with Floating Harbor Syndrome and it is very important to acknowledge their contribution so that their valuable time and efforts are well recognised.
In some instances, we have no names, only the organisation or the website; if you recognise your link, please get in touch so that we can update our database and amend the record accordingly.
In no particular order, we would like to thank and acknowledge:
The Staff @ Genetic Disorders UK
Tania Tirraoro (CEO) – Special Needs Jungle
Lois Lander – Genetic and Rare Diseases Information Center (GARD)
FHS contact page – Contact a Family FHS
Sarah Nikkel (Geneticist) @ http://med.uottawa.ca/pediatrics/
Susan Spinasanta (Managing Medical Editor, Vertical Health) Scoliosis in Children
CAF London office – CAF Organisation
Online Mendelian Inheritance in Man – www.omim.org
Rachel Marsh – Anti-Bullying UK
Microcephaly Foundation – http://www.childrenwithmicro.org/pictures1.html
Genome Medicine University of Exeter
London Genetics – Guys and St.Thomas
Noni Louther, parent of FHS young adults (Australia)
Meghan Towne – Genetic Counsellor Boston Childrens Hospital, Boston, MA
Dinah Aitken and Mig Coupe – Salvesen Mindroom
Floating Harbor Syndrome 