A FHS parent’s experience of Scoliosis –
“Our sons both had a scoliosis one worse than the other, even though they are identical twins. The problem was found to be not a primary scoliosis but it was secondary to significant hip dysplasia. In fact one hip had collapsed so much that it caused a lot of leg shortening and thus that affected the spine. So, nothing could be done to the hips  (perhaps some new hips along the line) but my sons leg was broken and then lengthened with a metal frame that we adjusted daily for some months. It did help straighten the spine and certainly stopped further damage. What was interesting is that he never complained of any hip pain at all. But overall both sons have a very high tolerance for pain and I have wondered if this might be part of the syndrome. 
Dysplasic hips are certainly part of FHS so might be an idea to keep an eye on that and check leg length as well as any spinal curvature.”


Scoliosis in Children

Scoliosis is a spinal disorder that causes the spine to curve to the left or right. This type

of abnormal curve may develop during childhood. There are different types of scoliosis,

although the most common type is termed idiopathic, which means the cause of the

scoliosis is not known.

To learn more about scoliosis, visit this article on

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