Staying Safe

With the Covid pandemic continuing world-wide, we all have to do what we believe is best for our family in keeping them safe.

Different countries have different instructions on staying safe when around people, so it is not a one fits all rule anywhere.

When it comes to Floating Harbor Syndrome, there is no current data available on whether your child is more susceptible to getting Covid or not, however given that this is a Developmental Delay, that has many complications, should alert the medical professionals to err on the side of caution and offer vaccinations to our children quickly.

One parent reports that they enquired about getting a vaccination for their FHS family member, to be told that the ‘condition’ has to be on the Government’s Medical List to be registered to receive their shot early.

The way to approach this, as FHS is so rare, is to contact your own family doctor, and ask them to intervene, requesting support for your child to get vaccination. It is because of the ‘unknown’ that should prompt urgent action.

Medical List from the CDC

Population Risk Assessment UK

COVID 19 and FHS

There is no evidence available to suggest that anyone with Floating Harbor Syndrome should or should not have to wear a mask during this pandemic.
It comes down to the choice of the parent/guardian, on what is the best solution for their child.

Please stay safe and get in touch if you have any other concerns.

Thank you